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I-DSD & I-CAH provide the means of connecting clinical and research centres around the world and allows these centres to enter standardised information aimed at improving clinical practice, research and understanding of conditions affecting sex development.

Click here to login to the I-DSD & I-CAH Registry

Recent News

Job Advert: The University of Bern are adverting a PhD position in DSD research. Find out more here.

Event Alert: ESPE Science Symposium 2020. This years focus is ‘Congenital adrenal hyperplasia: from molecular medical research to clinical application’. See the invitation here

The Steering Committee would like to thank Amy Wisniewski and Richard Ross for their contribution and applications will open again at the end of this year. Applications are especially encouraged from active users of I-DSD and I-CAH, clinical and scientific experts whose fields are under-represented and patients. 

Steering Committee

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About

In April 2020, the Registry had reached over 4200 cases with a median age of 16 years from 103 centres from 40 countries in Africa, Asia, Europe, North America and South America.  There are 1500 cases of CAH.

Contact

Please fill in the contact form if you wish to contact us and we will get back to you as soon as possible.