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I-DSD & I-CAH provide the means of connecting clinical and research centres around the world and allow these centres to enter standardised information aimed at improving clinical practice, research and understanding of conditions affecting sex development.

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Recent News

A Publication Plan to guide investigators on authorship of papers generated from I-DSD/I-CAH registry studies is out for consultation until August 2020. Find it here

Launch of new I-DSD/CAH Registry Platform (May 2020). Full details of the New Platform

Event Alert: I-DSD/CAH User Group Meeting – Webinar 9th September 2020. Registration now open to users of the I-DSD/CAH registries. Further details

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About

In April 2020, the Registry had reached over 4200 cases with a median age of 16 years from 103 centres from 40 countries in Africa, Asia, Europe, North America and South America. There are 1500 cases of CAH.

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