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I-DSD & I-CAH provide the means of connecting clinical and research centres around the world and allow these centres to collect standardised information aimed at improving clinical practice, research and understanding of conditions affecting sexual development and maturation.

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Recent News

The 8th I-DSD Symposium in 2021 will be held as a webinar on the 8th and 9th July 2021.

New Publication for I-CAH. Ali et al ‘Real World Estimates Of Adrenal Insufficiency Related Adverse Events In Children With Congenital Adrenal Hyperplasia’ JCEM Sept 2020

August 2020 newsletter

Launch of new I-DSD/CAH Registry Platform (May 2020). Full details of the New Platform

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About

In November 2020, the Registry had reached over 5500 cases with a median age of 16 years from 106 centres from 40 countries in Africa, Asia, Europe, North America and South America. There are over 1680 cases of CAH.

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