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I-DSD & I-CAH provide the means of connecting clinical and research centres around the world and allow these centres to enter standardised information aimed at improving clinical practice, research and understanding of conditions affecting sex development.

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Recent News

Launch of new I-DSD/CAH Registry Platform (May 2020).  Full details of the New Platform

Event Alert:  I-DSD/CAH User Group Meeting – Webinar 9th September 2020. Details

The Steering Committee would like to thank Amy Wisniewski and Richard Ross for their contribution and welome new members Mohamed Fahmy, Philippe Touraine and Margarett Shnorhavorian. Applications to join the Committee will open again at the end of this year. Applications are especially encouraged from active users of I-DSD and I-CAH; clinical and scientific experts whose fields are under-represented and patients. 

 

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About

In April 2020, the Registry had reached over 4200 cases with a median age of 16 years from 103 centres from 40 countries in Africa, Asia, Europe, North America and South America.  There are 1500 cases of CAH.

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