Create an account

Please click here to create a new account in the registry.

Once you have created your new account please complete the  membership application form and return it to registry@i-dsd.org.  Accounts will activated upon receipt of payment.

I-DSD/I-CAH Membership Fee:

Full Membership:

Standard annual fee full member – €100 (Low/Middle Income: €50)

Discounted annual fee full member for those who are known co-authors on full papers published within the last 3 years of membership using data from the registries: €50 (Low/Middle Income: €25)

Benefits:

  • Discounted fee to the scientific meeting of all condition-specific registries supported by the Office for Rare Conditions, Glasgow
  • Eligibility for travel awards and presentation prizes at the scientific meeting of all condition-specific registries supported by the Office for Rare Conditions, Glasgow
  • Members’ directory of all condition-specific registries supported by the Office for Rare Conditions, Glasgow
  • Newsletters of all registries supported by the Office for Rare Conditions, Glasgow
  • The right to apply for a position on the Steering Committee or the Scientific Panel of all condition-specific registries supported by the Office for Rare Conditions, Glasgow
  • Access to the members only section of the condition-specific registry supported by the Office for Rare Conditions
  • Provision of clinical benchmark data for patient reported outcomes
  • Free advice for initial research related enquiry to any registry supported by the Office
  • Nominate auxiliary members

Associate Membership:

Reduced annual fee for those who would like to search other users and centres  – €50 (Low/Middle Income: €25)

Benefits:

  • Discounted fee to the scientific meeting of the condition-specific registry
  • Eligibility for travel awards and presentation prizes at the scientific meeting of the condition-specific registry
  • Member’s directory
  • Newsletters and news alerts
  • Access to the members only section of the website
  • Fee for submitting enquiry to any registry supported by the Office

Auxiliary Membership:

This membership level applies for other users at a centre where a user is registered as a Full Member.

Benefits:-

  • No membership fee
  • Confirmation/support of Full Member required
  • Discounted fee to the scientific meeting of the condition-specific network for up to 3 auxiliary members from each centre
  • Eligibility for travel awards and presentation prizes at the scientific meeting of the condition-specific registry network
  • Member’s directory
  • Newsletters and news alerts
  • Access to the members only section of the website.

Patient/Parent Membership: 

Benefits:-

  • No membership fee
  • Access their own data

Please click here to create a new account.