Data Access Committee

The DAC consists of the project staff at the Office for Rare Conditions in Glasgow and External Members who serve on the Committee for 3 years (plus 1 optional).  If you are interested in becoming a member of the Committee get in touch.

Hedi ClaahsenChair, Nijmegen2022
Faisal AhmedProject Lead, Office for Rare Conditions, GlasgowNA
Salma AliClinical Research Fellow, Office for Rare Conditions, Glasgow2023
Manuela BrösamlePatient Representative, Germany2023
Nadine HornigNon-clinical Researcher, Kiel2022
Nils KroneClinical Researcher, Sheffield2022
Anna Nordenström Steering Committee Chair, Stockholm,2022
Sandosh PadmanabhanStatistical oversight, University of Glasgow2024
Jeremy TomlinsonClinical Researcher, Oxford2024
Janielle van der VeldenClinical Researcher, Nijmegen2025
Jillian BryceProject Manager, Office for Rare Conditions, GlasgowNA

Data Access Committee members’ area