The DAC consists of the project staff at the Office for Rare Conditions in Glasgow and External Members who serve on the Committee for 3 years (plus 1 optional). If you are interested in becoming a member of the Committee get in touch.
| Member | Role | Term |
| Hedi Claahsen | Chair, Nijmegen | 2022 |
| Faisal Ahmed | Project Lead, Office for Rare Conditions, Glasgow | NA |
| Salma Ali | Clinical Research Fellow, Office for Rare Conditions, Glasgow | 2023 |
| Manuela Brösamle | Patient Representative, Germany | 2023 |
| Nadine Hornig | Non-clinical Researcher, Kiel | 2022 |
| Nils Krone | Clinical Researcher, Sheffield | 2022 |
| Anna Nordenström | Steering Committee Chair, Stockholm, | 2022 |
| Sandosh Padmanabhan | Statistical oversight, University of Glasgow | 2024 |
| Jeremy Tomlinson | Clinical Researcher, Oxford | 2024 |
| Janielle van der Velden | Clinical Researcher, Nijmegen | 2025 |
| Jillian Bryce | Project Manager, Office for Rare Conditions, Glasgow | NA |
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