The DAC consists of the project staff at the Office for Rare Conditions in Glasgow and External Members who serve on the Committee for 3 years (plus 1 optional). If you are interested in becoming a member of the Committee get in touch.
| Member | Term | |
| Hedi Claahsen | Chair, Nijmegen | 2022 |
| Faisal Ahmed | Project Lead, Glasgow | NA |
| Salma Ali | Glasgow | 2023 |
| Manuela Brösamle | Germany | 2023 |
| Nadine Hornig | Kiel | 2022 |
| Nils Krone | Sheffield | 2022 |
| Anna Nordenström | Stockholm | 2022 |
| Sandosh Padmanabhan | Glasgow | 2024 |
| Jeremy Tomlinson | Oxford | 2024 |
| Janielle van der Velden | Nijmegen | 2025 |
| Jillian Bryce | Project Manager, Glasgow | NA |
I-DSD 