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Ethics & IRB Approval

The I-DSD/CAH Registry has been approved by the National Research Ethics Service in the UK.

Ethical Approvals

Ethics Approval for the I-TurnerSyndrome Registry Jan 2021

Ethics Approval for the I-DSD/I-CAH Registry Sept 2019
Ethics Conditions of Approval Sept 2019
Data Access Policy (SOP) Sept 2019

The I-DSD/CAH Registry is also on the UK NIHR Clinical Research Network Portfolio (Study Reference 12729).

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