Governance

The I-DSD/I-CAH/I-TS Registries are managed and administered by the joint I-DSD/CAH/I-TS Steering Committee. The Steering Committee meets periodically and is responsible for the overall direction of the initiative. The registries have a Data Access Committee (formerly referred to as the Scientific Panel) which reviews new research proposals and reports to the Steering Committee. Day to day management of the registries is undertaken by the Project Management Group.

Members of the Steering Committee and the Data Access Committee have fixed terms. If you would like to join any of the committees, please join us as an I-DSD/ I-CAH or I-TS user or subscribe to our newsletter and look out for our announcements.