Studies using I-CAH Data
Utilisation Of The I-CAH Registry As A Tool For Facilitating Health Quality Improvement Strategies- Results Of An International Survey Of Specialist Centres | ESPE2021 | 59th Annual ESPE | ESPE Abstracts
Salma R. Ali; Jillian Bryce; Martin McMillan; Michele O’Connell; Justin H. Davies; S. Faisal Ahmed
https://abstracts.eurospe.org/hrp/0094/hrp0094p2-13
Current Management Of Acute Adrenal Insufficiency Related Adverse Events In Children- Results Of An International Survey Of Specialist Centres | ESPE2021 | 59th Annual ESPE | ESPE Abstracts
Salma R. Ali; Jillian Bryce; Nils P. Krone; eHedi L. Claahsen-van der Grinten; S. Faisal Ahmed
https://abstracts.eurospe.org/hrp/0094/hrp0094p1-110
Growth-Related Characteristics of Patients <18 Years of Age with Congenital Adrenal Hyperplasia Due to 21-Hydroxylase Deficiency (21OHD): Real-World Evidence from the I-CAH Registry | ESPE2021 | 59th Annual ESPE | ESPE Abstracts
Mallory Farrar; Wei He; Salma R Ali; Jillian Bryce; Neil Lawrence; Federico Baronio; der Grinten Hedi L. Claahsen-van; Walter Bonfig, Nils Krone, Chuck Yonan & S. Faisal Ahmed
https://abstracts.eurospe.org/hrp/0094/hrp0094p1-3
International practice of therapy monitoring in congenital adrenal hyperplasia – Real World data from the I-CAH registry | ESPE2021 | 59th Annual ESPE | ESPE Abstracts
Neil Lawrence; Irina Bacila; Jeremy Dawson; Jillian Bryce; Erica van den Akker; Tania Aparecida Sartori Sanchez Bachega; Federico Baronio, Niels Holtum Birkebæk, Walter Bonfig, Hedi Claahsen, Eduardo Correa Costa, Liat Devries, Heba Elsedfy, Ayla Guven, Sabine Hannema, Violeta Iotova, Hetty J van der Kamp, Maria Clemente Leon, Corina Raducanu Lichiardopol, Tatjana Milenkovic, Uta Neumann, Ana Nordenström, Sukran Poyrazoglu, Ursina Probst-Scheidegger, Luisa De Sanctis, Ajay Thankamony, Ana Vieites, Zehra Yavas, Faisal Ahmed & Nils Krone
https://abstracts.eurospe.org/hrp/0094/hrp0094p1-6
Variation of glucocorticoid dose and biomarkers in children with congenital adrenal hyperplasia – longitudinal analysis of real world data from the I-CAH registry | ESPE2021 | 59th Annual ESPE | ESPE Abstracts
Neil Lawrence; Irina Bacila; Jeremy Dawson; Jillian Bryce; den Akker Erica LT van; Sartori Tania Aparecida; Sanchez Bachega; Federico Baronio, Niels Holtum Birkebæk, Walter Bonfig, Hedi Claahsen, Eduardo Correa Costa, Liat Devries, Heba Elsedfy, Ayla Guvan, Sabine Hannema, Violeta Iotova, Hetty J van der Kamp, Maria Clemente Leon, Corina Raducanu Lichiardopol, Tatjana Milenkovic, Uta Neumann, Anna Nordenström, Sukran Poyrazoglu, Ursina Probst-Scheidegger, Luisa De Sanctis, Ajay Thankamony, Ana Vieites, Zehra Yavas, Faisal Ahmed& Nils Krone
https://abstracts.eurospe.org/hrp/0094/hrp0094fc1.2
Long-term Cardiometabolic Morbidity In Young Adults With Classic 21-Hydroxylase Deficiency Congenital Adrenal Hyperplasia | ESPE2021 | 59th Annual ESPE | ESPE Abstracts
Beatrice Righi; Salma R Ali; Jillian Bryce; Jeremy W Tomlinson; Walter Bonfig; Federico Baronio; Eduardo C Costa; Guilherme Guaragna Filho, Guy T’Sjoen, Martine Cools, Renata Markosyan, Tania A S S Bachega, Mirela C Miranda, Violeta Iotova, Henrik Falhammar, Filippo Ceccato, Marianna R Stancampiano, Gianni Russo, Rade Vukovic, Roberta Giordano, Inas Mazen, Ayla Güven, Feyza Darendeliler, Çukran Poyrazoglu, Liat de Vries, Mona Ellaithi, Eleni Daniel, Colin Johnston, Steven J Hunter, Paul V Carroll, Safwaan Adam, Colin G Perry, Tara Kearney, Prakash Abraham, D Aled Rees, Graham P Leese, Nicole Reisch, Nike M M L Stikkelbroeck, Richard J Auchus, Richard J Ross & S Faisal Ahmed
https://abstracts.eurospe.org/hrp/0094/hrp0094p1-8
Related to I-CAH
Re-appraising the use of urinary steroid profiles for assessing therapy control in children with 21-hydroxylase deficiency – results from the CAH-UK cohort study | ESPE2021 | 59th Annual ESPE | ESPE Abstracts
Irina Bacila; Neil Lawrence; Sabah Alvi; Timothy Cheetham; Elizabeth Crowne; Urmi Das; Mehul Dattani; Justin H. Davies; Evelien Gevers, Ruth Krone, Andreas Kyriakou, Leena Patel, Tabitha Randell, Fiona Ryan, Faisal S. Ahmed, Brian Keevil, Norman Taylor & Nils Krone
https://abstracts.eurospe.org/hrp/0094/hrp0094fc1.3
A prospective study of children 0-8 years with congenital adrenal hyperplasia and adrenal insufficiency on treatment with hydrocortisone granules monitored by 17-OHP saliva sampling | ESPE2021 | 59th Annual ESPE | ESPE Abstracts
Uta Neumann; Katarina Braune; Martin J Whitaker; Susanna Wiegand; Heiko Krude; John Porter; Dena Digweed; Bernard Voet; Richard Ross & Oliver Blankenstein
https://abstracts.eurospe.org/hrp/0094/hrp0094p2-17
I-DSD 