The I-DSD/CAH registry is approved in the UK as a research database that archives non-personally identifiable information collected as part of routine clinical practice. The database operates an Opt-In policy for consent for patients whose details are included in the Registry. Please use the patient information sheets and consent forms according to the country/language relevant to your centre. Local approval may be required so please consult local institutional advisors. Many centres use the I-DSD information sheets to obtain consent for DSD and CAH. However, for some languages CAH specific information sheets are also available. If you have any queries about these information sheets or would like to develop information sheets in another language, please contact us.
English (new September 2019):
Arabic
Argentina
- CEI-aprob I-DSD
- Registro I-DSD AI 14-17 años
- Registro I-DSD AI 7-13 años
- Registro I-DSD CI Padres y adultos
- Registro I-DSD SOP versión 2
Belgium
Brazil
- Brazil (Portuguese) Information sheet for adults
- Brazil (Portuguese) Information sheet for child
- Brazil (Portuguese) Consent Form (Word)
- Brazil TCLE GIEDDS
Bulgaria
China
Egypt
French (new June 2020)
Germany
Israel
Italy
Morocco
Netherlands
- Informatie_brief_vanaf 16 jaar_I_DSD_I_CAH registry version 1,0
- Informatie_brief_jongeren 12 tot 16 jaar_I_DSD I_CAH registry version 1,0
Poland
Russia
- Информационный лист о Регистре I-DSD для взрослых
- Информационный лист о Регистре I-DSD для детей
- Cогласие на ввод данных в Регистр I-DSD
