Information and consent forms

The I-DSD/CAH registries are approved in the UK as a research database that archives non-personally identifiable information collected as part of routine clinical practice. The database operates an Opt-In policy for consent for patients whose details are included in the Registry. Please use the patient information sheets and consent forms according to the country/language relevant to your centre. Local approval may be required so please consult local institutional advisors. Many centres use the I-DSD information sheets to obtain consent for DSD and CAH. However, for some languages CAH specific information sheets are also available. If you have any queries about these information sheets or would like to develop information sheets in another language, please contact us.