Information sheets & Consent Forms

The I-DSD/CAH registry is approved in the UK as a research database that archives non-personally identifiable information collected as part of routine clinical practice. The database operates an Opt-In policy for consent for patients whose details are included in the Registry. Please use the patient information sheets and consent forms according to the country/language relevant to your centre. Local approval may be required so please consult local institutional advisors. Many centres use the I-DSD information sheets to obtain consent for DSD and CAH. However, for some languages CAH specific information sheets are also available. If you have any queries about these information sheets or would like to develop information sheets in another language, please contact us.

Language City Centre Date of  last revisionPIS AdultPIS Child Consent form
ArabicGlasgowRoyal Hospital for Children23/02/2017Document, download, file, files, pdf iconDocument, download, file, files, pdf iconDocument, download, file, files, pdf icon
ArabicCairoCairo National Research Centre17/12/2013Document, download, file, files, pdf icon
Arabic CasablancaHopital D’ Enfant Universitaire Abderrahim Harouchi22/07/2014Document, download, file, files, pdf icon
BulgarianGlasgowRoyal Hospital for Children24/02/2016Document, download, file, files, pdf iconDocument, download, file, files, pdf icon
Chinese ChangchunFirst Hospital of Jilin University,22/07/2014Document, download, file, files, pdf icon
DutchGhentUZ-Ghent19/11/2012Document, download, file, files, pdf icon
Dutch NijmegenRadboud-MC09/06/2015Document, download, file, files, pdf iconDocument, download, file, files, pdf iconAdult:Document, download, file, files, pdf iconChild:Document, download, file, files, pdf icon
English
(I-DSD)
GlasgowRoyal Hospital for Children06/09/2019Document, download, file, files, pdf iconDocument, download, file, files, pdf iconDocument, download, file, files, pdf icon
English
(I-CAH)
GlasgowRoyal Hospital For Children06/09/2019Document, download, file, files, pdf iconDocument, download, file, files, pdf iconDocument, download, file, files, pdf icon
FrenchBrusselsHopital Universitaire des Enfants Reine Fabiola23/06/2020Document, download, file, files, pdf iconDocument, download, file, files, pdf iconDocument, download, file, files, pdf icon
GermanLubeckUNIVERSITÄTSKLINIKUM Schleswig-Holstein22/07/2014Document, download, file, files, pdf iconDocument, download, file, files, pdf icon
GermanBernUniversitäts Kinderklinik Bern 11/07/2016Document, download, file, files, pdf iconDocument, download, file, files, pdf icon
HebrewPetah TiqvahSchneider Children’s Medical Center22/07/2014Document, download, file, files, pdf icon
ItalianPisaAzienda Ospedaliera Universitaria Pisana27/08/2013Document, download, file, files, pdf iconDocument, download, file, files, pdf icon
PolishPoznanPoznan University of Medical Sciences10/09/2013Document, download, file, files, pdf iconDocument, download, file, files, pdf icon
PortugueseCampinasCidade Universitaria Campinas22/07/2014Document, download, file, files, pdf icon
PortugueseGlasgowRoyal Hospital for Children13/08/2015Document, download, file, files, pdf iconDocument, download, file, files, pdf iconDocument, download, file, files, pdf icon
RomanianGlasgowRoyal Hospital for Children15/02/2015Document, download, file, files, pdf iconDocument, download, file, files, pdf iconDocument, download, file, files, pdf icon
RussianGlasgowRoyal Hospital for Children22/08/2014Document, download, file, files, pdf iconDocument, download, file, files, pdf iconDocument, download, file, files, pdf icon
Spanish Buenos AiresHospital de Niños R. Gutiérrez07/01/2014Document, download, file, files, pdf icon7-13:Document, download, file, files, pdf icon
13+Document, download, file, files, pdf icon
Document, download, file, files, pdf icon
Spanish BarcelonaVall d’Hebron Research Institute04/11/2016Document, download, file, files, pdf iconDocument, download, file, files, pdf iconDocument, download, file, files, pdf icon
TurkishLubeckUNIVERSITÄTSKLINIKUM Schleswig-Holstein09/08/2012Document, download, file, files, pdf iconDocument, download, file, files, pdf icon
UrkrainianKievUkrainian Center of Endocrine Surgery,20/09/2017Document, download, file, files, pdf iconDocument, download, file, files, pdf icon

If you have any queries about the information sheets then please contact: registry@i-dsd.org