The I-DSD/CAH registry is approved in the UK as a research database that archives non-personally identifiable information collected as part of routine clinical practice. The database operates an Opt-In policy for consent for patients whose details are included in the Registry. Please use the patient information sheets and consent forms according to the country/language relevant to your centre. Local approval may be required so please consult local institutional advisors. Many centres use the I-DSD information sheets to obtain consent for DSD and CAH. However, for some languages CAH specific information sheets are also available. If you have any queries about these information sheets or would like to develop information sheets in another language, please contact us.
| Language | City | Centre | Date of last revision | PIS Adult | PIS Child | Consent form |
| Arabic | Glasgow | Royal Hospital for Children | 23/02/2017 |  | | |
| Arabic | Cairo | Cairo National Research Centre | 17/12/2013 | | ||
| Arabic | Casablanca | Hopital D’ Enfant Universitaire Abderrahim Harouchi | 22/07/2014 | | ||
| Bulgarian | Glasgow | Royal Hospital for Children | 24/02/2016 | | | |
| Chinese | Changchun | First Hospital of Jilin University, | 22/07/2014 | | ||
| Dutch | Ghent | UZ-Ghent | 19/11/2012 | | ||
| Dutch | Nijmegen | Radboud-MC | 09/06/2015 | | | Adult:Child: |
| English (I-DSD) | Glasgow | Royal Hospital for Children | 06/09/2019 | | | |
| English (I-CAH) | Glasgow | Royal Hospital For Children | 06/09/2019 | | | |
| French | Brussels | Hopital Universitaire des Enfants Reine Fabiola | 23/06/2020 | | | |
| German | Lubeck | UNIVERSITÄTSKLINIKUM Schleswig-Holstein | 22/07/2014 | | | |
| German | Bern | Universitäts Kinderklinik Bern | 11/07/2016 | | | |
| Hebrew | Petah Tiqvah | Schneider Children’s Medical Center | 22/07/2014 | | ||
| Italian | Pisa | Azienda Ospedaliera Universitaria Pisana | 27/08/2013 | | | |
| Polish | Poznan | Poznan University of Medical Sciences | 10/09/2013 | | | |
| Portuguese | Campinas | Cidade Universitaria Campinas | 22/07/2014 | | ||
| Portuguese | Glasgow | Royal Hospital for Children | 13/08/2015 | | | |
| Romanian | Glasgow | Royal Hospital for Children | 15/02/2015 | | | |
| Russian | Glasgow | Royal Hospital for Children | 22/08/2014 | | | |
| Spanish | Buenos Aires | Hospital de Niños R. Gutiérrez | 07/01/2014 | | 7-13: 13+ | |
| Spanish | Barcelona | Vall d’Hebron Research Institute | 04/11/2016 | | | |
| Turkish | Lubeck | UNIVERSITÄTSKLINIKUM Schleswig-Holstein | 09/08/2012 | | | |
| Urkrainian | Kiev | Ukrainian Center of Endocrine Surgery, | 20/09/2017 | | |
If you have any queries about the information sheets then please contact: registry@i-dsd.org
