User Guides

A new platform for the I-DSD/I-CAH/I-TS registry was launched in May 2020.  All data, active users and centres from the old registry have been migrated.

The platform can be accessed here:

A read-only version of the old registry which had been active since 2008 is also available for reference only (no data to be added):

Email announcing new platform to users



User manuals have been created for the different types of user

Manual for Contributors & Centre Leads 260520

Manual for Patient users 260520