Online Data Access Process
Use the on-line form to submit requests for data to the I-DSD/I-CAH/I-TS Data Access Committee (formerly Scientific Panel).
On-line Data Request Form (webropol link)
The on-line form is a smart form. Depending on the type of project you are planning, a sub-set of questions will open up. You can select more than one option. Please use these guides to help you prepare your application:
- Option 1 To assist with designing a new project
- Option 2 To perform a survey of participating centres
- Option 3 To obtain deidentified existing patient data from the registry
- Option 4 Any other project
With the guides above you can use this word version to complete your application off-line and then copy and paste into the on-line version:
Data Request Form (offline word version) (for reference purposes only – not to be submitted)
Data Dictionary – Data Request Justification section
Questions 24 and 25 require you to specify and justify the data elements requested. Please complete the relevant section of the Data Dictionary to specify and justify these data. Then send by e-mail upon submission of the online Data Request Form.