- 26th September 2018 – 5-9pm: I-DSD/CAH user group meeting, Sofia Children’s Hospital in Athens. Attendance is free but please register on-line . There is an option to join us for a meal afterwards. Further information including the final programme is available from the event website.
26th September 2018, Agia Sofia Children’s Hospital – Amphitheatre of Choremeio Research Laboratory, Athens, Greece
Important Dates
Final Programme – April 2018
Registration Deadline – 31st August 2018
Dinner Registration Deadline – 31st July 2018 (50 places pre-register on a first come, first served basis)
The meeting is aimed at:
- Clinical and basic scientists who use (or plan to use) the I-DSD/I-CAH registries to conduct or contribute to research
Other Activities
- Showcasing research performed using the registries
- Group dinner
Programme
I-DSD/ I-CAH user group meeting 2018 – Athens
Venue: Agia Sofia Children’s Hospital – Amphitheatre, Athens
|
Time |
Topic |
Speaker |
|
1700 |
Start |
|
|
1715 |
Welcome |
Anna Nordenstrom |
|
Chair |
Anna Nordenstrom & Nils Krone |
|
|
Completed Studies (process and results) (8 mins and 2 mins questions) |
||
|
1730-1740 |
Trends in Sex Assignment |
Zosia Kolesinska |
|
1740-1750 |
Outcome in PAIS |
Angela Lucas-Herald |
|
1750-1800 |
Birth Weight in Different Etiologies of DSD |
Sukran Poyrazoglu |
|
1800-1810 |
Fludrocortisone & Salt in Young Children with CAH |
Uta Neumann |
|
Ongoing studies (process and results) (8 mins and 2 mins questions) |
||
|
1810-1820 |
Assessing the Value of I-CAH Registry for Pharmacovigilance |
John Porter |
|
1820-1830 |
Outcome in 45X/46XY |
Marie Lindhart Johansen |
|
1830-1840 |
Growth Patterns in XY DSD with SGA |
Martine Cools |
|
1840-1850 |
Identifying Novel Forms of AIS |
Nadine Hornig |
|
1850-1900 |
Outcome in Girls with PAIS |
Guilherme Guaragna |
|
1900-1930 |
Break |
|
|
1900-1910 |
Parent Reported Outcomes In CAH & DSD |
Salma Ali |
|
1910-1920 |
Genetics of DSD Associated with CV Abnormalities |
Ken McElreavey |
|
1920-1930 |
Trends in Gonadectomy in DSD |
Angela Lucas Herald |
|
2000-2020 |
Future Developments Streamlining – Optimizing Data Support Collection (10 min – 10 min) Membership of I-DSD/ I-CAH, written information |
Jillian Bryce, Faisal Ahmed |
|
2020-2030 |
Open Discussion, AOB |
|
|
2030 |
Finish |
|
Meal after meeting – Agora Restaurant (a short walk from the venue)
Map
Please direct all enquiries to the International DSD Symposium Office, Jillian.Bryce@glasgow.ac.uk
