Past Events

  • 26th September 2018 – 5-9pm: I-DSD/CAH user group meeting, Sofia Children’s Hospital in Athens. Attendance is free but please register on-line . There is an option to join us for a meal afterwards.   Further information including the final programme is available from the event website.

 

26th September 2018, Agia Sofia Children’s Hospital – Amphitheatre of Choremeio Research Laboratory, Athens, Greece

Important Dates

Final Programme – April 2018

Registration Deadline – 31st August 2018

Dinner Registration Deadline – 31st July 2018 (50 places pre-register on a first come, first served basis)

On-line registration form

The meeting is aimed at:

  • Clinical and basic scientists who use (or plan to use) the I-DSD/I-CAH registries to conduct or contribute to research

Other Activities

  • Showcasing research performed using the registries
  • Group dinner

Programme

I-DSD/ I-CAH user group meeting 2018 – Athens

Venue: Agia Sofia Children’s Hospital – Amphitheatre, Athens

Time

Topic

Speaker

1700

Start

1715

Welcome

Anna Nordenstrom

Chair

Anna Nordenstrom & Nils Krone

Completed Studies (process and results) (8 mins and 2 mins questions)

1730-1740

Trends in Sex Assignment

Zosia Kolesinska

1740-1750

Outcome in PAIS

Angela Lucas-Herald

1750-1800

Birth Weight in Different Etiologies of DSD

Sukran Poyrazoglu

1800-1810

Fludrocortisone & Salt in Young Children with CAH

Uta Neumann

Ongoing studies (process and results) (8 mins and 2 mins questions)

1810-1820

Assessing the Value of I-CAH Registry for Pharmacovigilance

John Porter

1820-1830

Outcome in 45X/46XY

Marie Lindhart Johansen

1830-1840

Growth Patterns in XY DSD with SGA

Martine Cools

1840-1850

Identifying Novel Forms of AIS

Nadine Hornig

1850-1900

Outcome in Girls with PAIS

Guilherme Guaragna

1900-1930

Break

1900-1910

Parent Reported Outcomes In CAH & DSD

Salma Ali

1910-1920

Genetics of DSD Associated with CV Abnormalities

Ken McElreavey

1920-1930

Trends in Gonadectomy in DSD

Angela Lucas Herald

2000-2020

Future Developments

Streamlining – Optimizing Data Support Collection (10 min – 10 min)

Membership of I-DSD/ I-CAH, written information

Jillian Bryce, Faisal Ahmed

2020-2030

Open Discussion, AOB

2030

Finish

Meal after meeting – Agora Restaurant (a short walk from the venue)

Map 

Please direct all enquiries to the International DSD Symposium Office, Jillian.Bryce@glasgow.ac.uk