Procedure for obtaining Registry data for Research

Searching the Registry for data at centres other than the user’s own centre is only possible by the project management team. Depending on the amount of work involved data searches will incur a small fee and researchers are advised to get in touch for further information.

The I-DSD/CAH team in Glasgow can provide more extensive study support depending on the investigator’s needs and may include:-

  • Advice on study process and design
  • Liaising with Registry users on behalf of the study investigators
  • Developing study specific modules

Prospective investigators should contact the office before embarking on, developing, or seeking funding for the study so that the costs of this proposed work can be clarified.

Please complete the following forms:

Once submitted all study documents are sent to the Scientific Panel for approval.

Scientific Panel Study Approval Process