Quality Improvement

This section will cover activities that use the I-DSD/I-CAH/I-TS Registries for improvement of the quality of care of people with these conditions. A number of studies that have been performed using data from the registries can be used to directly improve care by understanding the reasons for variation and providing feedback to individual centres through individualised centre-specific reports.  To increase the focus on care quality improvement (CQI), the I-DSD/I-CAH/I-TS Steering Committee is pleased to announce that Justin Davies (Southampton) has joined the Committee in January 2021 as the lead for the CQI group which is currently in the process of being formed.

MemberAffiliation
Justin Davies (Chair)Southampton Children’s Hospital, University Hospital Southampton, UK
Michele O’ConnellThe Royal Children’s Hospital & Murdoch Children’s Research Institute, Melbourne, Australia
Faisal AhmedOffice for Rare Conditions, University of Glasgow, UK
Salma AliDevelopmental Endocrinology Research Group, University of Glasgow, UK
Navoda AtapattuLady Ridgeway Hospital, Cololmbo, Sri Lanka
Marion RappKinderzentrum Pelzerhaken, Holstein, Germany
David SandbergChild Health Evaluation and Research Center, Ann Arbor, USA
Margarett ShnorhavorianSeattle Children’s Hospital, USA
Jillian BryceI-DSD/I-CAH Project Manager, Glasgow