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    • Data Elements
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      • Protocol for using the registry
      • Information sheets & Consent Forms
      • Ethics approval
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      • Accessing your record
      • Registering a patient in the I-DSD/I-CAH/I-TS Registry
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      • Procedure for obtaining Registry data for Research
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    • News & Events
    • The 8th I-DSD/I-CAH Symposium 2021

Research Access

Reasons for requiring Research Support from the Registry

  •   Search for cases
  •   Designing a study
  •   Preparing case for funding
  •   Performing a study (may require additional local ethical approval)

Procedure for obtaining Registry data for Research

Publication Plan

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