Members usually serve on the Committee for 5 years. If you are interested in being part of the Steering Committee please get in touch.
Current Members
| Name | Role | Affiliation | End of Term |
| Anna Nordenström | Chair | Karolinska Institute, Stockholm | I-DSD 2023 |
| Christa Flück | I-DSD 2021 and Incoming Chair | Inselspital, Universitätsspital Bern Bern | I-DSD 2024 |
| Hedi Claahsen | Data Access Committee | Radboud MC, Nijmegen | 2022 |
| Justin Davies | Care Quality Improvement Committee | Southampton Children’s Hospital, University Hospital Southampton | 2026 |
| Claus Gravholt | Ordinary Member | Aarhus University Hospital | 2026 |
| Mohamed Fahmy | Ordinary Member | Al Azher University, Cairo | 2025 |
| Kenneth Scott | Ordinary Member | Klinefelter Syndrome Assoc, UK | 2024 |
| Arlene Smyth | Ordinary Member | Office for Rare Conditions, Glasgow | 2026 |
| Margarett Shnorhavorian | Ordinary Member | Seattle Children’s Hospital | 2025 |
| Philippe Touraine | Ordinary Member | Hôpital Pitié Salpêtrière, Paris | 2025 |
| Michele O’Connell/ Shuba Srinivasan | APEG | Royal Children’s Hospital Melbourne/The Children’s Hospital at Westmead, Sydney | Coterminous |
| Reiko Horikawa | APPES | National Centre for Child Health and Development | Coterminous |
| Terry Piloya-Were | ASPAE | Makerere University, Kampala | Coterminous |
| Olaf Hiort | Endo-ERN | University of Lübeck | Coterminous |
| Tülay Güran | ESPE | Marmara University, Istanbul | Coterminous |
| Courtney Finlayson/ Meilan Rutter | PES | Lurie Children’s Hospital of Chicago/Cincinnati Children’s Hospital | Coterminous |
| Guilherme Guaragna Filho | Latin America | Federal University of Rio Grande do Sul, Porto Alegre | 2026 |
| Faisal Ahmed | Project Lead | Office for Rare Conditions, Glasgow | NA |
| Jillian Bryce | Project Manager | Office for Rare Conditions, Glasgow | NA |
| Shannon Mullen | Project Support | Office for Rare Conditions, Glasgow | NA |
Steering Committee Members’ Area
