The new platform for the I-DSD/I-CAH/I-TS registry was launched in May 2020. All data, active users and centres from the old registry have been migrated.
The platform can be accessed here: registry.i-dsd.org
Email announcing new platform to users
User manuals have been created for the different types of user
Manual for Contributors & Centre Leads 260520
Manual for Patient users 260520
Registry drop-in sessions
We hold drop-in sessions by zoom on the 4th Friday of each month. Please come along if you would like a walk-through of the registry or have any questions about using the registry/getting started.