User Guides & Drop-in Sessions

The new platform for the I-DSD/I-CAH/I-TS registry was launched in May 2020.  All data, active users and centres from the old registry have been migrated.

The platform can be accessed here:

Email announcing new platform to users


User manuals have been created for the different types of user

Manual for Contributors & Centre Leads 260520

Manual for Patient users 260520

Data Elements – I-DSD

Registry drop-in sessions

We hold drop-in sessions by zoom on the 4th Friday of each month. Please come along if you would like a walk-through of the registry or have any questions about using the registry/getting started.